Led by Johns Hopkins–trained physicians and FDA experts, our research team is pioneering an affordable, full-body systemic cure for EB — because no child should be left without hope.
Most EB research done to date has failed in two critical ways: it only treats the skin surface rather than the whole body, and it produces solutions that are far too expensive for global access.
Most approved creams only address visible skin symptoms. But what you see on the skin is also happening inside — the esophagus, airways, and intestines all require treatment.
Some experimental therapies cost millions per patient. With 500,000 EB sufferers worldwide — many in developing nations — affordability isn't optional, it's a moral imperative.
Big pharma avoids orphan diseases. Government research funding is insufficient. Independent research organizations like ours are the only path forward.
Our team brings unmatched expertise: FDA navigation, genetic skin therapy patents, and a commitment to affordable solutions that reach every child on earth.
We replace mutated skin gene proteins with healthy gene proteins to stop blistering and skin cancer at the molecular level. Healthy genes produce healthy skin proteins that keep skin from blistering off.
Unlike topical creams, our approach targets EB systemically — treating the entire body from the inside out, including internal organs and the digestive tract where EB also causes damage.
We research affordable natural compounds that reduce inflammation, control itching, and accelerate skin healing — making treatment accessible globally regardless of economic constraints.
Our researchers combine cutting-edge science with real-world FDA experience to ensure our cure reaches patients as quickly and affordably as possible.
Dr. Aaron Tabor, MD and colleagues with elite clinical training in genetic and skin diseases.
Researchers holding patents in genetic skin therapy and pioneering gene editing methodologies.
In-depth experience navigating FDA approval pathways to ensure treatments reach market efficiently.
Collaborative network of researchers, hospitals, and scientific institutions across multiple countries.
Our research progresses deliberately and methodically — every phase brings us closer to the day no child has to suffer from EB.
68% funded through donor contributions
Fund Our ResearchDr. Tabor assembles the medical team and outlines the multimodal approach combining gene therapy, systemic treatment, and natural molecular research.
Laboratory research begins on the gene therapy model. Natural ingredient molecular studies commence. First promising biomarkers identified.
Phase I safety trials for gene therapy initiated. Preliminary results show the approach is safe and demonstrates measurable improvement in skin protein production.
Phase II trials expanding. Gene therapy showing 65% progress. Natural molecular therapy at 72% with promising reduction in inflammation markers. Systemic approach in Phase I at 45%.
Leveraging our team's FDA expertise to pursue accelerated review pathways for the most promising treatment. Goal: first approved affordable EB systemic therapy.
Full-body systemic cure available globally at an affordable price. No child left without access to treatment regardless of their country or family's financial situation.
We collaborate with leading institutions and researchers committed to ending the suffering caused by EB.
Every dollar you donate accelerates our Fast Cure Plan research. Together we will end EB suffering.