Children We Serve
Each child below is real. Their pain is real. Your donation creates real relief.
In Care
Ashley
Age 8 · Junctional EB · Active in Care
"Hi, I'm Ashley. EB causes my skin to blister off and it is very painful. Your donations make my pain less. I always have bandages, medicine and food. Thanks for donating to save my life. God bless you."
Ashley was diagnosed with Junctional EB at birth. Her entire body is wrapped in specialist bandages changed daily in a process that takes hours and causes her significant pain. Despite this, Ashley maintains remarkable courage and a warm spirit that inspires everyone around her.
Medical Needs
Critical Need
Joyce
Age 6 · Dystrophic EB + Hydrocephalus + Cancer
"Hi! I am Joyce. Thank you so much for recently donating to save my life and many other forgotten children suffering with EB Blistering Skin Disease, Hydrocephalus and Cancer. Your donation helps me to never run out of bandages, antibiotics and special nutrition. Thank you again." — Joyce
Joyce faces not one but three devastating conditions simultaneously. Her EB alone would be enough to endure — but she also battles Hydrocephalus (excess fluid on the brain) and Cancer. Your monthly donations ensure she has continuous access to the medical supplies keeping her alive.
Medical Needs
Urgent
Baby Lily
Age 2 · Severe Dystrophic EB · 80% Skin Involvement
Baby Lily has severely painful and very deep blisters on 80% of her body. Friction or pressure causes blisters making a good hug dangerous and deadly. She is our spokesperson and most urgent case.
Lily's wounds fuse with her bandages — every bandage change causes so much crying and bleeding that she requires regular blood transfusions. She is fighting to survive every single day. Her mother is her unwavering advocate and caregiver, sacrificing everything to keep Lily alive.
Medical Needs
More Children We Serve
Every child below depends on your generosity to survive.
In Care
In EB's most severe form, many babies don't live beyond a year. Nofer is fighting every day. Your support provides her with specialist bandages and pain medication.
Recovering
John's progress has been dramatic thanks to donor-funded bandages and ointments. He is still fighting but showing remarkable improvement. He is proof your donation works.
In Memory
Mirachael bravely served as our spokesperson and touched countless hearts. She gained her angel wings, but her legacy lives on in every child we help. Donate in her memory.