Epidermolysis Bullosa (EB) causes babies' skin to blister and peel at the lightest touch — even a loving hug can be dangerous. We are fighting to end this suffering through research, medical care, and unwavering compassion.
To save the sickest, most medically neglected children suffering in severe pain with terminal diseases. Their lives depend on your loving, compassionate donations.
Epidermolysis Bullosa (EB) is a rare, genetic blistering skin disease where a baby's skin blisters and peels at the lightest touch — even a loving hug can cause severe, life-threatening wounds.
A gene defect weakens the bond between skin layers
Friction, pressure, even heat trigger devastating blisters
Over 500,000 suffer globally — yet it remains underfunded
We are pioneering a Fast Cure Plan with gene therapy
Behind every statistic is a child with a name, a family that loves them, and a future worth fighting for. Meet some of the courageous children we serve.
In Care
"Your donations make my pain less. I always have bandages, medicine and food. Thank you for saving my life." — Ashley
Critical Need
Joyce battles EB alongside Hydrocephalus and Cancer. Your donation ensures she never runs out of antibiotics, bandages, and nutritional support.
Urgent
Lily has blisters on 80% of her body. Every bandage change is traumatic and painful. She needs blood transfusions regularly just to survive.
Our world-class medical team — including Johns Hopkins–trained physicians and FDA experts — is developing an affordable, full-body systemic cure for EB.
Replacing mutated skin gene proteins with healthy ones to stop blistering and skin cancer at the source.
Full-body approach targeting both internal and external symptoms — not just topical skin creams.
Affordable natural compounds to reduce inflammation, itching, and speed skin healing for all patients worldwide.
Right now, EB children are in severe pain waiting for bandages, medication, and hope. Your donation — no matter the size — creates real, measurable change today.
Help us reach our goal to cover critical medical supplies
Our research team reports breakthrough findings in gene therapy approach targeting the root cause of EB blistering...
Read Full StoryAshley's family shares a message of gratitude for everyone who made her eighth birthday possible through continued support...
Read Full StoryOver 800 supporters gathered in Colorado Springs for our most successful awareness event to date, raising critical research funds...
Read Full StoryWhether through donations, volunteering, corporate partnership, or spreading awareness — every act of kindness counts.
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US 501(c)(3) nonprofit · EIN #82-2743807 · Tax-deductible donations
731 Chapel Hills Drive, Colorado Springs, CO 80920
donate@nobabiesblister.org
469-431-2343 (text preferred)
In the time it takes to read this, an EB child somewhere has endured a painful bandage change. Your donation today provides real relief and real hope.